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Adolescente com doença falciforme : conhecimento da doença e adesão ao tratamento
(Universidade Federal do Espírito Santo, 2015-09-28) Martins, Gisely Vieira Ramos; Furieri, Lorena Barros; Luciano, Luzimar dos Santos; Bringuente, Maria Edla de Oliveira
Sickle cell disease (SCD) is a very common genetic disease in Brazil, mainly in brown and black ethnic groups. Every year, more than 300,000 babies are born with severe form of sickle cell disease in the world. In Brazil, about 50 thousand people are carriers of the SCD. Such harm is characterized by genetic changes and the prevalence of hemoglobin S (HbS) rather than hemoglobin A, considered the regular one. Studies show that almost 80% of deaths from this disease occur in subjects under 30 years old. Thus, the aim of this study was to describe the knowledge of adolescents with SCD about the disease and its treatment adherence. It is a descriptive and crosssectional research with qualitative approach. The method consisted in recording twenty individual interviews using a semi-structured form, targeting adolescents with sickle cell disease treated between March and May of 2015 at the hematology ambulatory of a federal public educational and research institution in Vitoria - ES.